On May 30th, 2014 my life changed forever. In the shower I noticed one of my ankles was swollen. Fearing a blood clot I went to urgent care. The doctor sent me to the emergency room. After a negative ultrasound and x-ray I was sent home. I wasn't satisfied with the diagnosis of unexplained lymphedema. That day I became a health detective, as many of us become. I vowed never to quit until I found the answer.
Months passed, and what felt like hundreds of doctors appointments, and I still had no acceptable diagnosis. The pain continued to increase culminating in a 5 day hospital stay in December of 2014 that rendered no answers. I faltered in my learned practice of positive thinking and fell into despair and unmanageable health anxiety. Through reading hundreds of threads on the internet, while searching for answers, I learned I was not alone. It seemed many of us had exhausted all of our options—but still needed help.
I was at a crossroads. It was time to look at things in a new way. I surrounded myself with exceptional practitioners and read as many books as I could get my hands on. Looking back I see that every blood test, biopsy, and MRI was another clue that led to my eventual diagnosis of Lyme disease.
I wonder if the infectious disease doctor would've done a simple Western Blot test when I asked her to almost a year before my eventual diagnosis, would I have grown this much as a person? As we know with any difficulty it ends up being our greatest teacher.
So far, I've learned...
...mindfulness is the most essential tool in healing.
...good health and balance are more important than certain foods I've had to give up or constantly being on the go.
...no one is as invested in my health as I am. I need to continue educating myself and be my own best advocate.
...I am not alone and there are those who have it much worse than I do.
...this illness will be the foundation upon which I build a new life.
A wise person once told me to look at this as my healing journey, and as someone who loves to travel, the phrase painted the perfect picture. This is my own personal adventure. Join me on this spiritual journey to wellness.
What have you learned on your healing journey?
"Wholehearted living is not a one time choice. It is process. In fact, I believe it is the journey of a lifetime." - from The Gifts of Imperfection by Brene Brown
I'm Kerry and I was diagnosed with chronic Lyme disease in 2016. This is a positive space for those of us coping with Lyme disease and other invisible illnesses.