During my sophomore year in college I randomly lost my singing voice. I was in the concert choir and when I opened my mouth nothing came out. This is just one of the many strange symptoms I had over the years that I never knew were related to Lyme disease. When I got a diagnosis in 2016 things started to make sense. Singer, Shania Twain, had a similar experience which she later attributed to Lyme.
This post was cathartic for me to write for the, because it helped me process all the health issues I had over the years. We all have different stories, but most of us can relate to years of seemingly unrelated symptoms eventually leading to a Lyme diagnosis.
You can read the full post here on the Global Lyme Alliance blog:
The Strange Symptoms I Never Knew Were Related to Lyme Disease
What strange symptoms did you have before your Lyme diagnosis? How did you feel when they finally made sense?
"It's never too late to be what you might have been." - George Eliot
Note: this essay first appeared on the LymeBrave Foundation blog on January 9th, 2018 and on The Mighty on January 19th 2018.
The universe was speaking to me long before I was finally diagnosed with Lyme disease in 2016. It was communicating with me through my symptoms, each one a wake up call to pay attention. Unfortunately, I ignored it over and over again. The first alarm was the panic attacks, then the shooting pain, the rapid heart rate, the swollen lymph nodes, on and on. And I didn't listen.
The stress of my job was literally killing me. With each passing year my symptoms worsened. Eventually, I was in and out of urgent care and the hospital desperately trying to figure out what was wrong with me. At my rock bottom I was in so much pain and had so little energy that all I did was go to work, come home and cover my body in heating pads until I crawled into bed for the night. Like most Lyme patients, my fight for a diagnosis was long and difficult.
The answer came about ten years after the onset of my health issues when I was finally tested for Lyme disease and put on antibiotics. That was two years ago and I've been making slow progress ever since.
After I was given the gift of a diagnosis my entire outlook on life shifted. In retrospect I realized that my failing health was an internal alarm system for my life. Each time I ignored the smoke, the fire got worse, until the flames were out of control and I couldn't ignore it any longer. That's when I started to reevaluate the direction of my life. The universe was telling me I was going the wrong way and if I wanted to heal I would have to make some major changes.
The first thing I had to change was my job. It wasn't easy leaving my full-time school social work job for a part-time job at a university. But once I took the leap, my health started to improve. Aches and pains lessened and my energy started to come back.
With each change, I felt the universe nudging me further. Lyme taught me to listen to the signals in my body, which in turn taught me how to listen to my intuition. I followed my passion for writing and slowly doors started to open. I decided I wanted to move to a warmer climate and as if by magic the opportunity came. The more I follow my true path, the better my health becomes.
It works in the opposite way as well. When I don't listen to what I need and stop taking care of myself, my symptoms worsen. When I start letting naysayers and skeptics get into my head and make me question my instincts, the universe answers back with a setback.
Sometimes it's hard to know exactly where this journey is leading me, especially with doctors making conflicting recommendations, and so many options to choose from. This is when I get very quiet and ask for guidance. Sometimes it shows up and other times it doesn't. I just have to know at the end of the day that I am doing my best to be true to myself and that even when I make mistakes, it's all part of the process.
What will I do next? This quote from the visionary Lyme doctor, Dietrich Klinghardt, is guiding my way. It's from the Lyme disease documentary, Under Our Skin 2: Emergence:
"If you have Lyme disease, by my definition, it means also you belong to a tribe here on the planet that is more conscious and more sensitive and also more likely to do something once you recover that will be of benefit for all of us."
As I slowly recover from Lyme I’ve been asking myself what can I do raise consciousness and be a benefit to others?
I don't have it all figured out just yet, but I know the voice of the universe will lead me to it. I just have to listen.
"Follow your instincts. That's where true wisdom manifests itself." - Oprah Winfrey
I'm Kerry (She/Her/Hers) and I am a licensed therapist, writer & speaker. This is a positive space focused on how to thrive in any situation and the transformative power of suffering.