What was your lowest point and how did you find your way out of it?
My lowest point was probably 2 years into being ill. I knew what I had but I wasn't getting better. I had a picc line in my arm with infusions 2 time a day. I was up until 5am many nights due to having 2-3 panic attacks in one night. I was trying to finish my college education, felt as sick as I had when I first got sick, and my life completely revolved around timing all my infusions, medications, supplements, and meals. I wanted to finish school so badly and not have to drop out in my last semester, but I felt so horrible it was such a challenge. I was scared and lost. I found my way out of it by just continuing to press forward. I knew there were answers and I was going to find them.

I began to connect more with others who had Lyme via social media and that really helped. I had people to talk to who understand what I was going through, who would support me, and who kept offering up suggestions for helping me find the right treatment.

Unfortunately, I've been really sick again lately, but I'm able to get through it "easier" now. I truly think that finding others who can relate to you and understand you is very important. I've made a lot of friends via social media, who I'm able to talk to on the bad days. I also consistently try to remind myself of the accomplishments I've made so far and try not to compare my journey with anyone else's because we are all different.

Finding routine and taking care of myself the best I can when I'm really low is important and taking moments in the day to do some deep breathing, stretching, or manifesting also helps a lot.

What is the one thing that you have found most helpful in treatment?
I'm assuming you want to know what treatment has been the most helpful but I'm going to answer a little different. The thing I've found most helpful in treatment is listening to my body. Our bodies are amazing, they are smart and know what they want. They do want to heal and they are fully capable of it. I still sometimes struggle with this but I've learned it's very important to listen to my body. My doctor can say XYZ is what I need but he isn't me and he isn't sick and he doesn't know how my body is feeling. If something doesn't feel right, I'm not going to do it. If a treatment begins to feel off or wrong then I'm going to stop. If I'm being drawn to some absurd sounding treatment, I'm going to give it a try. I truly believe our bodies know what works for us, we just have to listen.

Do you have any advice for the newly diagnosed?
Find a great doctor who knows about Lyme and knows what they are talking about. And make sure it is someone you feel comfortable with. If a doctor is supposedly the top doctor in your state, but you don't connect with them well, then don't be afraid to switch doctors. Again, our bodies and our intuition know best, so listen to that.

Lyme is a very complicated illness (because it encompasses so much more than just the Lyme bacteria), so you really need someone who understands that or a team of people willing to work together who understand different aspects of Lyme. Also, immediately cut out the junk food, educate yourself, and begin instilling healing practices into your daily life (anything from detox baths, to healthy cooking, to meditation).

This disease is a life changer, so be prepared for that, but it's a big, important lesson, too. You got sick for a reason, you are here to learn, it's not the end, I promise.

Who inspires you in the Lyme community?
Every other person with Lyme. I'm inspired daily by the battle that everyone in the chronic illness community fights, for their willingness to keep going, their strength to battle all of the symptoms, and just for being them. Everyone in this community is who keeps me going and reminds me that I can do this, one baby step at a time.
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Please share a mantra or quote that inspires you?
Maybe it's cheesy or cliche but I have this quote as my desktop on my computer and it keeps me going, "A smooth sea never made a skilled sailor." We all learn from our mistakes and hardships and, dang, am I learning a lot.

​I'm always looking for new stories and perspectives on Lyme disease, healing, and wellness. If you are interested in being featured on The Lyme Interview, head on over to my Connect page. 

"Life doesn't get easier or more forgiving; we get stronger and more resilient." - Steve Maraboli

When it comes to detox strategies and alternative therapies, I am not the bravest individual.

There are many things I'd like to try, certain supplements, new essential oils, Himalayan salt lamp, infrared sauna, IV Light Therapy, the list goes on and on.

One of my nagging symptoms is the swelling of my lymph nodes and swelling in my right leg. No matter how many antibiotics I take, it's still there. The doctors think it is caused by the infection in my spine. So, for a long time I've wanted to try lymph drainage massage therapy. I am always game for a massage and I desperately need to drain my lymph, so it was a win win.

Lymph drainage massage is the use of light, repetitive massage to improve the flow of lymph in the body. It's commonly used in patients with cancer who've had lymph nodes removed, but can also be used for others with lymphedema, not as a cure, but as a treatment. The goal is increase flow within a stagnant lymphatic system to promote better immune function.

I was able to find a practitioner not far from my house. I went in having no idea of what to expect. I wasn't scared per se, my doctor told me it was completely safe, but when you stir up a bunch of stuff in a Lyme patient's body, you never know what you're going to get.

The massage table in the room was like any other massage table, but the massage therapist had me facing up. It's also done with clothing on, which added another level of comfort. 

It was not like a massage in that the therapist did not rub my back or sore muscles. She used repetitive motion over small spots where lymph nodes are typically located, mostly in the head, neck, and clavicle area. Then, she used the same motion over larger parts to move the lymph toward my heart, so it could be removed from my body. Think of it as squeezing toothpaste out of a bottle, but the bottle just happens to be my leg. 

After the massage, the therapist warned me I might be going to the bathroom more frequently as the fluid leaves the body. A day and a half later I noticed this happening. 

Immediately following, I felt a little foggy headed, like something had been dislodged and was working it's way out. My leg also felt less tight than it usually does. Two days later I noticed one of the lymph nodes behind my ear was the tiniest bit smaller. 

The massage therapist said my lymph was moving easily. She attributed it to the dry brushing I'd been doing, which was good to hear, because I haven't really felt any immediate effects. I've been dry brushing regularly for about a month. I use this brush. I bought it on Amazon for $12: 

​Refer to the Mind Body Green article, A Step-By-Step Guide For Dry Skin Brushing, for more information about dry brushing.  

The massage therapist also told me my lymph nodes were more swollen on my right side and that in fact, the entire right side of my body was swollen, not just my leg. The crazy things that can happen with Lyme and coinfections.  

Lymph drainage massage is a complementary therapy recommended by both integrative and conventional medicine. The only downside is the cost, which is about the same as a regular massage. My massage therapist told me I should go every 2-3 weeks to start and then we can keep increasing the time in between visits. When I weighed the cost and the benefits, I scheduled my next appointment right away. I wish I'd tried it sooner.    

What complementary therapies have you tried that work? 

"Fall in love with taking care of yourself. Mind. Body. Spirit." - Unknown

Due to my wanderlust, the editor at Lymeology asked me to write an article about traveling with chronic illness. Of course, I said yes. Writing about travel is my favorite. 

One of my friends described traveling with Lyme like "traveling with a challenging passenger." An aggravating backseat driver, always interjecting at the wrong times, making everything a little more difficult. 

I am so grateful I am still able to do most of the things I used to do before my diagnosis. I may not do everything as well as I did in the past, but I am not bedridden like so many other Lyme patients.

Traveling is one of those things I would be devastated if I had to give up. There are substitutions for certain foods and types of exercise, but there is no substitution for looking out over the Grand Canyon for the first time. I don't want to stop. In fact, I want to travel even more; so, over my last few vacations I developed some strategies to make the most out of my experience. You can read the full post here: 
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12 Tips on Traveling with Chronic Illness 

​This is the pill organizer I use when I travel. It fits so many pills and supplements. Also, each day is separate, so you can carry it with you while sightseeing: 

​And these are the shoes I bought for our most recent travels. They go with any outfit and you can walk around in them for hours: 

​Any other Lyme patients out there love to travel? Let's connect. I'd love to hear about your adventures, and maybe even publish them on my Adventures page. 

"Afoot and lighthearted I take to the open road." - Walt Whitman ​​