I've heard the fall is tough on Lyme patients and this fall has not been an exception for me. So far it's been full of symptom flares and new symptoms as the weather fluctuates and allergens abound.
It has me feeling a little more blue than usual. For awhile, I thought things were improving and then I have another set back. A doctor recently asked me when the last time I felt healthy was and I honestly didn't have an answer. That question was the inspiration for this article.
You can read it in full on the Global Lyme Alliance website:
I've Been Sick So Long I Can't Remember What It Feels Like to Be Healthy
How long have you been sick? When was the last time you felt healthy?
"At the end of the day all you need is hope and strength. Hope that it will get better, and strength to hold on until it does." - Unknown
When I see people I haven't seen in awhile our conversation has a way of revolving around my illness. I don't do it intentionally. My friends and family are curious about my progress and healing from my illness takes up a lot of time and brain space. My fellow blogger and writer Susan Pogorzelski posted "10 Things About Me Not Related to My Illness" on her Instagram and I thought it was a great idea. I think it's something we should all think about. I did a similar post called 25 Things You Didn’t Know About Me, which was more fun facts, but this will be more about who I am as a person.
10 Things About Me Not Related to My Illness:
1. I recently watched Minimalism: a Documentary About the Important Things and now my husband and I are planning to downsize our living space and get rid of most of our things. I also plan to read the book Minimalism: Live a Meaningful Life by Joshua Fields Millburn, one of the men featured in the documentary, to further my understanding of minimalism.
2. It's been a lifelong dream of mine to go whale watching, and I finally fulfilled that dream when we went on a cruise in Alaska in July/August of 2017. During the cruise we saw whale spouts or tails almost every day. Then, when we were in Juneau we went on a whale watching tour and saw tons of humpback whales and even an orca. We were so lucky to see a double breach (although I only saw the second whale). It was amazing, because whales don't usually breach in Alaska.
I plan to get a humpback whale tattoo for the next Ink to End Lyme event to represent rising up from under the water and strength.
3. Podcasts are my new obsession. I listen while I'm getting ready in the morning, commuting to work, and while doing chores. My favorites include: Lyme Ninja Radio, The School of Greatness, Beautiful Writers Podcast, Pod Save America, 2 Dope Queens, Gleeman & The Geek (Minnesota Twins podcast), The Art History Babes, You Must Remember This, and The Social Work Podcast. Maybe I'll start one of my own one day.
6. I love the water and anything that has to do with water. The ocean, lakes, rivers, waterfalls, and even fountains. We visited Niagara Falls this past summer and it was breathtaking.
4. I grew up in Minneapolis and it's still one of my favorite places. I go back about three times a year and always love driving along the river and seeing how things have changed since the last time I was there. The friendliest and most down to earth people live in Minnesota. I'd move there if it wasn't so cold.
5. Chai tea lattes are my biggest weakness, so I bribe myself with them. If I go to a yoga class, I allow myself one small chai tea latte (with alternative milk of course). At home, I brew a cup of decaf chai tea and then add hemp milk.
6. I love taking our dog, Scooter, on walks around our neighborhood in Chicago. The truth is he actually walks me, because he knows where he wants to go and leads me there. He's stubborn, but incredibly loving. Sometimes I dress him up and he hates it.
7. I don't have any children and I'm not currently planning to have any. I have a niece and nephew whom I adore and are good for a kid fix when I need one.
8. My lucky number is four and my lucky symbol is the four-leaf clover, even though clover is considered a weed in Ireland. The reason is because I was born on June 14th.
9. I'm a true Gemini--full of contradictions and a personality pulled in opposite directions. Gemini's are known communicators and I love to communicate through speaking and writing. We're naturally inquisitive and ambitious, but also easily bored and overly opinionated.
10. My favorite thing to do is travel and my goal is to see the world. The next destinations I want to visit are Hawaii, London, Italy, and Australia.
Please consider doing this exercise. It helped me remember that my illness does not define me. I decide what defines me. I would be happy to create a blog post for you about your ten things. Just reach out through my contact page with your list and a few pictures.
"Identity cannot be formed or fabricated, but emerges from within when one has the courage to let go." - Doug Cooper
I'm Kerry and I was diagnosed with chronic Lyme disease in 2016. This is a positive space for those of us coping with Lyme disease and other invisible illnesses.