There are so many jokes about restricted diets, especially gluten-free diets. They are usually made by people who have never tried a restricted diet, and are unaware of the challenges and benefits. Since I've been on a mostly gluten-free diet the past two years, my pain has improved significantly. That is enough for me to continue the diet, even if people poke fun from time to time.
I've wanted to write an article about this topic for a while, so I was grateful to have a platform like the Global Lyme Alliance blog to speak out. You can find the article through the link below:
Why You Should Never Make Fun of a Restricted Diet
For additional reading on the topic of gluten-free diets I got a lot out of the book Grain Brain by David Perlmutter, MD.
How do you cope with people joking about your diet or your illness?
"There is no high fructose corn syrup in the farmers market. There are no monoglycerides, no triglycerides. None of those additives are present in fresh, seasonal food." - Michael Pollen
On March 9th, 2017 the Global Lyme Alliance hosted an Evening of Art and Education in Chicago. It was the the first GLA event held outside of New England. The Event took place at the Matthew Rachman Gallery and featured two Lyme doctors, Dr. Casey Kelley from Whole Health Chicago and Dr. Christopher Janson.
The evening began with a social hour with drinks and gluten-free appetizers. I brought my husband, so he could meet people in the Lyme community and learn some new information.
During the social hour we met Kasey, a Chicago area Lyme fighter, who reached out the GLA to bring the event to Chicago, and did much of the planning. We also talked to a newly diagnosed patient, just starting out on the long road to healing. There was an electric energy in the room of camaraderie and understanding.
I was delighted to meet the CEO of the GLA, Scott Santarella, and introduce myself as a contributor to the GLA blog.
After the social hour Scott and Kasey talked about the GLA mission and the importance of bringing events to the midwest. I was touched when Scott said, "There is no other disease in the world where the patients are treated so unjustly."
Then, they introduced the doctors: Dr. Christopher Jason is a neurologist, who works does research and works out of the University of Illinois at Chicago. His current research on the blood brain barrier is funded by the GLA. Dr. Casey Kelley is a functional medicine doctor at Whole Health Chicago.
The doctors gave brief explanations of their areas of expertise and then answered questions from the attendees. People in the group had excellent questions about testing, symptoms, depression and Lyme, and many other important topics.
Dr. Kelley talked about how in Lyme treatment there are, "Different paths up the mountain," and that everyone responds differently. She also commented that a major part of Lyme treatment is "cleaning up the mess, so the body can rebuild on its own," and said, "remission is possible."
It was a lovely evening and I enjoyed the atmosphere. I came away hopeful, but as with anything related to Lyme, also frustrated and confused about why recognition and funding continues to be an uphill battle.
Here's a picture from the end of the evening with fellow Lyme fighter and friend, Jenny:
I want to thank the GLA for bringing the event to Chicago and I look forward to future events.
"Life is precious and time is a key element. Let's make every moment count and help those who have a greater need than our own." - Harmon Killebrew
I'm Kerry (She/Her/Hers) and I am a licensed therapist, writer & speaker. This is a place to acknowledge and validate our trauma, while also learning how to turn toward aliveness and spaciousness when possible.